Today is the day

January 21 2025

Today marks a significant and emotional milestone in our lives. On January 21, 2025, we celebrate the beginning of a new chapter in Natalia’s journey. After 152 days of endless uncertainty, sleepless nights, tears, and an abundance of hope and faith, we are overjoyed to share that Natalia has been discharged from the NICU. Her journey now begins as part of our family of four.

While we are thrilled to have her home, Natalia’s care requires 24/7 attention, and her future remains uncertain. She is living with an ultra-rare condition known as Bohring-Opitz Syndrome, and we are committed to giving her the best possible care and quality of life.

We want to express our deepest gratitude for your unwavering support, generosity, and encouragement during this challenging time. We also ask you to help us raise awareness about Bohring-Opitz Syndrome by sharing Natalia’s story with your friends and family.

Your support means the world to us and will help create brighter days for Natalia as we embark on this new chapter together. Thank you for being a part of our journey.