Supporting Natalia's Nest
Fundraiser
Our Core Initiatives
Taking action for a brighter future
Community
Outreach
A Call to Action flyers were delivered door to door in Short Beach to support Natalia and her family. They are faced with Bohring-Opitz syndrome (BOS), a Syndrome that will cause a lifelong struggle for Natalia and her family. Neighbors filled Short Beach Community Church (SBUC) , signed up to volunteer, gave donations, gave their campaign ideas and expressed support for the family
Tuesday
NATALIA PIZZA NIGHT 5/27
Genaros New Owners, Erloni and Endri Support THE NATALIA RUBIO FAMILY
Order LAEGE PIZZA(S) for $20...
50% goes directly to: THE SUPPORT NATALIA RUBIO FAMILY CAMPAIGN
PLACE ORDER BY CALLING OR TEXTING
203-390-7098
Consider donating to the Fundraiser
Please consider donating directly to the campaign through our GoFUNDME page at the folowpong link
Any donation isn't too small every dollar counts for Natalias Future
Yoga for Natalia
Elevate Your Essence with a yoga fundraiser series for
Natalia Rubio
Location: Pardee Park Pavilion (rain or shine)
BYO yoga mat, blocks, etc.
Suggested cash donation: $10-$20 per class
Contact Peggy Carpenter with any questions
(203) 376-1720
We have an account at Homemakers Thrift Shop, 4 Brushy Plain Road, Branford. Also consider donating your personal and home related items to “Natalia’s Nest”. We will receive a portion of the sales price of your sold items. Any questions about these donations should be directed to Nadja, 203-314-9853.
What is Bohring-Opitz Syndrome
Bohring-Opitz syndrome (BOS) is a rare genetic disorder characterized by a distinctive set of physical and developmental features.
Symptoms:
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Eye problems: Myopia (nearsightedness) and exophthalmos (bulging eyes)
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Heart defects: Structural heart defects, such as septal defects
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Kidney problems: Wilms' tumor (a rare type of kidney cancer)
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Respiratory problems: Recurrent infections and sleep apnea
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Other: Feeding difficulties, failure to thrive, and an increased risk of tumors
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Craniofacial abnormalities: Trigonocephaly (wedge-shaped head), microcephaly (small head), prominent forehead, cleft palate, and cleft lip
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Skeletal abnormalities: Joint stiffness, short limbs, and unusual posture
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Intellectual disability: Variable severity, ranging from mild to severe
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Developmental delays: Motor and language delays
Natalia's Community
Support
Building a better and brighter future for Natalia
The Committee to Support Natalia Rubio’s Family was born from the kindness and generosity of the Short Beach Union Church community. Recognizing the immense challenges faced by the Rubio family, church members came together and voted to adopt the Rubio family as their major outreach project.
With a deep commitment to making a meaningful impact, the church, alongside dedicated longtime neighbors, organized a Short Beach Community Meeting. The turnout was nothing short of incredible—the church was filled with people eager to show their support, share ideas, and commit to helping ensure that Natalia has every possible chance to live a full and happy life.
From that meeting, a beautiful wave of generosity and action emerged. Neighbors will be displaying signs of support on their front lawns, making it clear that the community stands united with the Rubio family. To provide financial assistance in the most efficient and transparent way, the church established a special account called "Natalia’s Nest", which avoids unnecessary fees and technical errors.
Fundraising efforts quickly took shape, with plans for two community dinners, a tag sale, and other events aimed at raising funds and awareness. What began as a simple desire to help has grown into a remarkable movement of love, faith, and collective action, ensuring that Natalia and her family never feel alone on this journey.
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